We are back from our AWESOME Make A Wish trip!
Published on Monday, July 07, 2014
Written by Sarah Kopacko
We are back from our AWESOME Make A Wish trip! The boys had a BLAST at the Disney Aulani Resort! I will post a list of their favorite activities, and then will give a quick medical update.
So, to start, there was an 8,200 sq ft pool that had a kids splash zone, an huge water fort, water slides, a large lazy river, adult pools, kids pools, and jacuzzis! There is also an area that walks straight out to a beach that is just for the resort, which was awesome! All throughout these pools were super fun activities and a huge snow cone place where they got some shaved ices as big as their heads! Jesse's dry suit came in right before the trip and worked very well, so both the boys had a great time in the water!
Colin and Jesse had a private meet and greet with Stitch and Mickey Mouse on day two. Jesse was terrified that they were "too real" so that turned into just a Colin meet and greet which he really enjoyed! The next day Jesse was better with the idea and got more comfortable every day as he saw the characters out and about. They ended up getting to dance with all the characters there (Mickey, Minnie, Goofy, Stitch, and Chip and Dale). They also had surf lessons and a private meet and greet with Chip and Dale (whom the LOVE). They made Stitch's space goo with Stitch twice and had so much fun with that too! I cannot forget the two hula parties they attended! Jesse has some awesome hula moves!!!
We got to see a huge fireworks show on the 4th of July. The following day Jason and Colin went on a 45 minute helicopter ride and toured most of the island we were on! Other than that, we did some scavenger hunts, and just had a blast spending time as a family with a special (basically family) friend who came to help with the boys. We could have never made it through the trip without her help and want to give a BIG shout out to Julie... Thank You!
As for medical. We had a few glitches with deliveries, but everything ended up working out well. Colin was a bit fatigued, but thanks to his new power chair, he got around and explored like a champ and loved the freedom! Jesse did not tolerate the plane rides well and started having the first of many seizures when we landed in Utah on the way to Hawaii. He had quite a few questionable moments where he may have had a seizure, and about 6 times where he for sure had a seizure on the trip. He ended up in the ER after the fireworks on the 4th of July because he had a pretty long seizure. He is now on a seizure medication that we hope will help, but makes him very unstable on his feet and causes some aggression/anger. It is sad to watch him struggle due to medication side effects. We are going to see his neurologist tomorrow to get an EEG and hopefully set up a MRI sometime in the near future. Jesse had a rough trip medically, but is so strong and still had an amazing time! I am very proud of both of them for pushing through their pain and having a great time at this awesome resort. These are definitely memories we will NEVER forget!
We will post an album of pictures soon, and we will post an update after we know more about Jesse's new seizure issues. Thank you all for the continued support and prayers!